My medications

I was thinking that the medications I take to keep the Lupus at bay is interesting.  For instance,according to my prescription bottle,Gabapentin,  for my neuropathy is used for treating seizures associated with epilepsy.  It may also be used for the shingles infection.  I also take Mycophenlat, which prevents organ rejection following kidney, liver or heart transplants.  None of my scripts contain the words "also used for Lupus."  I do not have seizures but it kills my nerve pain.  I did not have an organ transplant nor do I have any major organ involvement with Lupus.  However, I just recently had to increase the Mycophenolat due to a two week crappy feeling.  I guess what I'm trying to say, I'm glad these drugs are available even though they need to be re-labeled :)

This is on my mind, since the walk is this Sunday.  I hope the Tri-State Lupus Foundation reaches their goal.  www.lupusloop.org/teamedelson

Today is good.

 What an awesome feeling to be pain free first thing in morning.  It makes the day seem like a breeze.  There is nothing I can't conquer today.  I fell asleep sitting up watching TV, with my Kindle in my hand and the dog at my feet.  She must of known to keep my feet warm or she just liked being on the sofa.  I even lost 3 lbs.   Maybe I will win the biggest Loser contest after all...

Hope is like a bird that senses the dawn and carefully starts to sing while its still dark. -Anonymous.

  I love to hear the birds sing but could they wait an hour?

Puffy clouds

I know I'm a dork, a geek, or whatever its called these days.  I can't help looking outside my very dirty windows at work.  Beyond those windows, is a beautiful sky.  The clouds are puffy like cotton balls, and so white and skimming the sky.  It's so peaceful.  I can imagine myself hanging out on one of those clouds, a book in one hand, and one of those fancy umbrella drinks in the other. 

The picture in this blog is to remember what life is really about. It's called positive noticing.  I try to store these moments in my head when things are not right in the world.  Puffy clouds make me smile, keep me focused on what is real in this world.  This picture was taken after a storm, and the sun was peaking out of the clouds.  It was how I felt that day....





3 colors?

I work in a industrial area with not much around.  My nutty boss has now painted the building 3 colors, bright blue, turquoise and bright green. 

 People in this immediate area would get this joke below...

If my boss decides to paint a mermaid on the side, and the stripper poles arrive, this woman is outta here!

Ironic.

"While it may be difficult to change the world, it is always possible to change the way we look at it"  -Matthieu Ricard

Someone once told me not to worry about the future.  You can't predict what happens tomorrow, 10 or 20 years from now.  Wouldn't it be great to have that crystal ball?  Of course, the problem with a crystal ball, it will not only tell you the good but will tell you the problems of your future. 

The irony, this person who gave me this great advice had a stroke today.  I hope he makes a full recovery.  Strokes are silent killers with barely any warning.  

I think I want to stay in the present.  Take one day or one hour at a time.  It makes life more exciting.  With Lupus, I can only expect to take one day at a time.